[personal profile] rm
I can't use the hair stuff I've been raving about anymore. Wheat wheat and wheat. I'm hoping I can cancel the order I already put in since I was about out.

Anyone got any recommendations for shampoo recipes and conditioner recipes? It looks like if I want what I want I have to clean up the kitchen and go all mad science on this thing. (and yes, you can post links to wheat-free shmapoo providers, but I'm so picky about scent and ingredients for other reasons, odds are my kitchen is the only answer at this point).

I'm unhappy.

On the plus side, Villainess soaps and BPAL seem to be safe.

Monday all my wheat goods in the house go bye bye -- opened things in the trash and unopened things (mostly sweets) as an offering to the office to keep them away from my goods.

It's hard, going back and forth between this sense of this entirely not being a big deal at all and then feeling like it is. The only thing I'm sure of, other than I feel better, is that I have no perspective right now.

Date: 2006-05-28 01:28 pm (UTC)
From: [identity profile] rm.livejournal.com
The communion thing is a problem, just not in a Catholic /Christian sense, and can problem easily be dealt with, but it is annoying because I liked the wheat/oat cakes.

I'm glad to hear you say about what you did and didn't do about diagnosis. I am going to go to a doctor about this once I have insurance, but I agree, in terms of not seeing what a biopsy would add to my diagnosis.

Did the change in diet effect your weight at all? I've lost some since this started, so putting on a bit isn't a problem, but it's important to me to be able to maintain a consistent weight for work reasons, and I'm wondering what if anything I should expect with my metabolism.

The ancestry thing I had found researching online, and is why i'm somewhat surprised -- I'm mostly Italian and Russian, and the part that isn't mostly isn't European at all.

The hair thing concerns me because my hair is evil and it involve letting the shampoo and condition sit on it for a good thirty minutes. I also sometimes do leave-in condition, whcih means I'm getting wheat all over my hands. And I can trace my getting sick with this to also being around the same time as the new shampoo with wheat in it, so I figure at least for recovering from the damage (because if I can't have bread, I want bacon again!) I need to get all this stuff the fuck away from me.

I am both interested and concerned about the mood thing. I can't have caffeine and have always relied on starches to keep my energy level up. This really throws a wrench into my habits. And while I'd love to be less crazy, if I become a shiny happy person because of all this, I dare say, i might be dissapointed.

I've been purchasing at the Whole Foods GF which as I've said before is a nightmare for someone with food texture issues. It all feels weird!

I suppose on the plus side I can eat at Chipotle again, as long as I get the rice bowl and not tortillas. I miss my Chipotle.

Date: 2006-05-28 04:45 pm (UTC)
From: [identity profile] raaven.livejournal.com
"Celiac disease is the most common genetic disease in Europe. In Italy about 1 in 250 people and in Ireland about 1 in 300 people have celiac disease. It is rarely diagnosed in African, Chinese, and Japanese people.

An estimated 1 in 4,700 Americans have been diagnosed with celiac disease. Some researchers question how celiac disease could be so uncommon in the United States since it is hereditary and many Americans descend from European ethnic groups in whom the disease is common. A recent study in which random blood samples from the Red Cross were tested for celiac disease suggests that as many as 1 in every 250 Americans may have it. Celiac disease could be underdiagnosed in the United States for a number of reasons."

From here: http://www.keepkidshealthy.com/welcome/conditions/celiac_disease.html

In Italy, all children are typically screened for celiac by age 6. So, not so weird that you could have it, in fact. Also, recent studies are putting the figure for Americans at as much as 1 in 133.

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