[personal profile] rm
I am marginally stalled on my current HP one-shot. Largely, I think, because my day-dreaming is wandering over similar character issues in upcoming Descensus (we are fucked with technical difficulties at the moment, but hopefully this will be solved shortly). Also, that weird heavy grief place I wrote those last two fics from seems to have lifted, which is great for me, but I do love my facility with words when I'm feeling solemn.

I'm also getting _really_ psyched for the JKR reading. Although I worry that no one else is going to be big silly dressed-up geeks other than myself and Kali. This is probably an idiotic worry -- both because it is unlikely and because hello, I bought the damn Snape coat because it actually fits in with my day to day wardrobe. As such, I should get over my shit and just run with it, ne?

Tonight, I had gluten-free Amy's Lasagna. Actually, made from gluten-free ingredients. It was made in a facility that processes gluten ingredients (something I normally avoid as I've had problems), which means it may not agree with me. It also wasn't that good -- but it was Italian food! for the first time in months. It made me happy. Hopefully the gluten-free pizza (not Amy's) will be better. It galls me that microwave pizza used to be a cheap nasty meal, but now it's a $7 treat. All of this is very hard. I should also note, as I noted to someone in email last night, that one of the weirder things about my diet shift since this happened, is I almost exclusively eat foods I can eat without utensils now. I really only use them in restaurants, and even then, such as if I have sushi, it's debatable. No bad table manners or anything, but there's been something in the simplifying of my food (much of what I eat is raw now, if it's not prepared by me, because then I know what's in it) that has also simplified my physical relationship with it.

Also on the gluten-free front -- HOLY SHIT, the gluten-free almond scones from Whole Foods are amazing. They are doughier than a normal scone (which is dry), but I haven't had the experience of anything really being doughy since I got sick. They are amazing, and conforms to the sort of quiet, almost savoury flavours I've come to like in sweets. I literally almost cried eating one of these things earlier. If that doesn't convince you that this is real, serious and life-altering, nothing will. It also occurs to me I need to find a phrase other than "since I got sick" since it seems clear that I've had this celiac thing my whole life (odd stomach, can't gain weight, utterly surly, skin probs) and it just reached a tipping point that made it necessary to diagnose and respond to. I'm still working on navigating this whole thing in terms of both concept and language. Do I have a serious disease or a merely major inconvenience? Does it matter? Does knowing what's wrong with me and responding to it make me more or less sickly than just being poorly and not responding to it? there's a quantification of self in all of this I am still learning how assess and address with precision.

SallyJean.com tells me something _important_ shipped to me on the 19th. But it's not here yet, and I am concerned.

This Anubis thing is getting HUGE in my head. You probably noticed that. But really, it's like this little thing that keeps sliding into place between all these not-so-disparate-as-I-thought things. It's awesome. Also, I chortled last night, reading something or other on it in which Anubis's role as messenger between the underworld and the gods caused the author to describe him as "the sardonic diplomat". I'm very good about not wishing that x or y or z was explained to me when I was younger. But wow, I could have used this knowledge at least a decade ago. But then, I probably wouldn't have grokked it or honoured it. and I'm a little scary when I can "use" things. Maybe "need" was necessary to make me not be a total jackass about it.

I really need, in a non-costuming way, to have some shirts made for myself. I loathe current dress shirts. I loathe soft collars. I loathe 3/4 sleeves (they make me look like a fucking cheetah. They are HORRIBLE). And while it's nearly impossible for me to dress how I wish at all, ever, in this heat, in the fall I'd like to have buttondown shirts I don't hate. This is also something that isn't that expensive to have done, and I really should make a point of it before the end of the year. My life will be a better place when I can just casually mention my tailor. Truly.

In both a costume and day-to-day aesthetic sense, I must note that http://jas-townsend.com/ rocks, despite being too early for my tastes (however, I can wear their boys sizes, and the breeches are quite servicable), and http://www.gentlemansemporium.com/ despie being too late (and not having things that will fit me particularly, but having _awesome_ accessories) both rock my world. But why, oh why, this gap for the Regency era? That said, I have in the last week or so found out where to buy all sots of little things I want/need for my ensemble, both general and for events. Really, you may think I'm nuts, but life is more fun with things like wooden dice, white gloves and monocles. If only I can solve this war between myself and dress shirts life with be quite nifty. Also, I need to get over the fact that the lapdesk I want doesn't exist and just find one I like, because it's one of those objects that has talismanic value to me, and it's high time I got one (it would also e tremendously useful, since my desk is covered with papers and the machine.

Date: 2006-07-27 07:52 am (UTC)
From: [identity profile] 00goddess.livejournal.com
1- you have a serious illness. Right now you are managing it; without proper management it can make your life really hellish. That's more than inconvenience, imo.

2- People with MS and some people with CFIDS use the term "exacerbation." We sometimes also say "flare-up." CFIDS and MS both have cycles of worse and better. It would appear that your celiac disease was minor until you had a really bad flare-up.

I am not gluten-free, but I am about to start making my own pizza crusts and freezing them for later use. Maybe such a thing would work for you? You could use some non-gluten flour and go right to town. I like thin crusts.



Date: 2006-07-27 03:26 pm (UTC)
From: [identity profile] rm.livejournal.com
I had a bad experience the other day asking the workers to change their gloves at Chipolte. I never go during the lunch rush, because that would fuck them up, and I always explain why and am nice about it. But between peopel not speaking English and a manager who seemed in credulous, it was a battle to get food, and I don't feel like I should have to keep doing the "look, it's not like I'll get hives, wheat consumption does permanent damage to my ability to absorb nutrients" blah blah blah speech. So it's always trying to find this balance between "hey as long as I don't eat gluten I'm fine" and "well this doubles my costs of food, adds hours to my day, EVERY DaY, just to eat safely, and is a permanent, serious thing"

celiac doesn't cycle for the most part (I know one person that it does for, but i can't make sense of that). I think, I just reached a tipping point, where a certain amount of non-repairable damage has happened to my intestine, and now it has to be atended to, or any gluten ingestion debilitates me. I guess those could be flareups, albeit with external sourcing.

So do I, being from NYC -- we only do thin crust, which helps. I think he gluten-free italian restaurant here also sells crusts. I have to get on the celiac baking bandwagon, but again -- hours in the day

Date: 2006-07-27 04:02 pm (UTC)
From: [identity profile] fleur.livejournal.com
What do you get at Chipotle? Are you okay if you get it in a bowl with no tortilla?

Date: 2006-07-27 04:03 pm (UTC)
From: [identity profile] rm.livejournal.com
Yup! The only gluten in thei food is in the tortillas. the corn shells and the bowls are safe with any of the meats and toppings as long as they change gloves.

Date: 2006-07-27 04:23 pm (UTC)
From: [identity profile] fleur.livejournal.com
For some reason I was under the false assumption that rice would be a problem. Not sure where I got that idea ...

OH and our home town girl got the axe on PR .. which I expected. She wasn't very inspiring. I can't believe how overlooked the African American guy is. His stuff is gorgeous!

Date: 2006-07-27 06:10 pm (UTC)
From: [identity profile] rm.livejournal.com
Nope, rice is one of my staples. It's the easiest to find replacement flour and although it can behave poorly in a lot of baking (the bread is terribly dry), it's good for frying and as a replacement starch.

The bad foods are: wheat, malt, rye, oats, barely, hops, spelt and undistilled white vinegar. Which means most packaged foods (which contain things like maltodextrin and other wheat-derived flavourings or preservatives) and lots of flavourings (white vinegar is in EVERYTHING like BBQ sauce and such) are off limits. As are beer and American cider (which often has hopps added for flavour; this is not true with foreign ciders).

Date: 2006-07-27 06:20 pm (UTC)
From: [identity profile] fleur.livejournal.com
A woman in my office just last week mentioned her parents buying beer for celiacs. You don't seem much of a beer drinker but if you're ever in Wisconsin, apparently they have it.

Date: 2006-07-27 06:21 pm (UTC)
From: [identity profile] rm.livejournal.com
Yup, I've heard about it. I'm not really a beer drinker at all, although I would often choose it when I didn't want to drink much, because I'm not that into it. So mainly I just have to be a bit more disciplined with myself since it's wine or hard liquor these days.

Date: 2006-07-27 06:23 pm (UTC)
From: [identity profile] fleur.livejournal.com
Celiac friendly beer is insanely expensive, so you aren't missing a thing.

Date: 2006-07-27 06:24 pm (UTC)
From: [identity profile] rm.livejournal.com
It's all INSANELY expensive in a $4 brownie sort of way.

Date: 2006-07-27 06:40 pm (UTC)
From: [identity profile] fleur.livejournal.com
yeesh!

I wonder how you do it, but then I think that probably being violently ill mitigates things a bit.

Date: 2006-07-27 06:42 pm (UTC)
From: [identity profile] rm.livejournal.com
I never even crave bread and I was a huge bread person. That's how terrible it is. There's almost no willpower battle. Only occassional when I'm unsure if something is safe (and my general rule is not to eat something I'm not certain of) will it be hard for me. Movie theatre popcorn is the big one. That takes a lot of will.

Date: 2006-07-27 07:10 pm (UTC)
From: [identity profile] fleur.livejournal.com
I think I might be able to deal with bread, but pasta might do me in.

Date: 2006-07-27 06:10 pm (UTC)
From: [identity profile] rm.livejournal.com
I think he and Laura will be the people who keep sneaking under the radar until the very end. They are both fantastic. And we should remember that Jay never won a single challenge. And even daniel V. who won five was the guy no one noticed for the first 4 eps.

Date: 2006-07-27 06:22 pm (UTC)
From: [identity profile] fleur.livejournal.com
I *completely* agree!!

I adore Kayne. Adore. He and Robert are far too funny together. Frighteningly, Tattoo Neck Guy is starting to grow on me. *shudder*

Date: 2006-07-27 09:48 pm (UTC)
From: [identity profile] 00goddess.livejournal.com
Fibro flareups can be caused by external things; a lot of stress or overexertion are big ones. For me, part of managing my illness is knowing my limits, reserving my energy, and not overexerting myself.

Yeah, hours in the day is a big PITA for me. It takes me so much longer to do things. And people really don't understand. If I say "We're going to drive instead of walk" people look at me like I not only have two heads, but am lazy to boot.

Date: 2006-08-03 05:58 am (UTC)
From: [identity profile] amberite.livejournal.com
Sometimes one must lie to the simpletons. It's a pain, but even I've resorted to telling an apartment manager who'd promised me window screens and hadn't delivered that I was allergic to the everpresent yellowjackets (really phobic actually, never been stung so I can't say whether it would kill me.)

Usually when food-finding for John we say "allergic" -- which is really a functional catch-all term even if it's not defined that way in the dictionary -- and if someone expresses doubt we say "he'll get sick for a month if even a smidgen gets in there", which widens their eyes appropriately and then they're careful.

Date: 2006-07-27 11:21 am (UTC)
From: [identity profile] phaenix-ash.livejournal.com
mildly random: about a month ago when i first arrived in Ohio, a friend that i was staying with handed me a book she said i HAD to read. "Tipping the Velvet" by sarah waters. have you read it? you're so well read and it's so up your alley i'm assuming you have but i mention it because i thought of you through the entire damned thing (which was actually quite good, just odd for me to be reading right now).

Date: 2006-07-27 03:26 pm (UTC)
From: [identity profile] rm.livejournal.com
I haven't actually, although people keep telling me to (or to see the movie). I should.

Date: 2006-07-27 12:25 pm (UTC)
From: [identity profile] strange-selkie.livejournal.com
Surely you have heard of them, but Bob's Red Mill makes a good gluten-free baking mix if you want to try the scones at home.

Date: 2006-07-27 03:27 pm (UTC)
From: [identity profile] rm.livejournal.com
I hadn't yet, aactually, thanks for the tip.

Date: 2006-07-27 04:03 pm (UTC)
From: [identity profile] strange-selkie.livejournal.com
Bob's Red Mill has the advantage of being mail-orderable through Amazon.com, and Arrowhead Mills can be found in most large grocery stores. Trader Joe's also sells gluten-free pasta, made of brown rice, and it's texturally wrongish but not scary tasting (speaking of Italian food).

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